Thursday, June 4, 2009

one step forward 2 steps back...

Bear in mind, Sam loves his school, likes all his teachers and therapists and is well treated there. We are grateful for all he is learning. And I ask you--with on ly 4 choices for communication which must be reprogrammed every time how can my son develop communication skills? So far as I know, no signing is encouraged at school. He is allowed four expressive statements from his talker (you try communicating much of anything like that, especially if you need help to ambulate) My son who needs help to do every little thing and wants to do more each day as he grows bored with previous accomplishments and old games(actually quite happy aobut that part) is stymied at every turn because of communication. and then the pictures for his 4 talker which I made (3 sheets that say approximagtely the same thing as I had to remake them 3 times) are kept at school.

Sam is actively discouraged from communication because the talker does not say what he wants. It is faster and easier for people around him to understand his grunts and whining so this behavior is rewarded, while other forms of communication are discouraged via boredom and frustration. This will not bee solved by sending them home more frequently or by having two sets. Sam needs a more adequate device.

I was told that once sam needs a more complicated device, he will get it. He needs one now: one that is easy to transport and has at least 8 choices. The way the 4 talker was chosen (I requested a device & proved via one that I cobbled together that he would use it regularly) was not a fair evaluation. Only one device of the augmentive specialist's choosing was given a trial while none of my suggestions were given a trial. I was repeatedly pressured to agree with this device. The device was purchased. Now he uses it, but it is inadequate for his needs. in order to progress, he needs a more complex, easily transportable device immediately. If the team does not feel this is true, he must be evaluated by an outside team (as I requested at a previous IEP--this was illegally denied.).

Funny, how interesting: I finally sent a note asking about three sheets I made for his 4 talker over the course of the past two weeks which were never sent home. I immediately received a call about a piece of his equipment that did not go back to school today. It has gone back to school every day this week, except today. hmm.

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